Ehlers-Danlos Syndrome (EDS) and Autism: What’s the Connection?
Many people live with more than one condition that affects daily life. One area of growing interest in research and clinical practice is the link between Ehlers-Danlos Syndrome (EDS) and autism. While they are very different conditions, evidence suggests that they may co-occur more often than expected.
In this blog, we’ll explore what Ehlers-Danlos Syndrome is, how it relates to autism, and why understanding the connection can help adults seek better support and care.
What is Ehlers-Danlos Syndrome (EDS)?
Ehlers-Danlos Syndrome is a group of connective tissue disorders that affect the body’s collagen. Collagen is vital for skin, joints, and blood vessel health. People with EDS often experience:
- Joint hypermobility (joints that move beyond the normal range)
- Chronic pain and fatigue
- Fragile or stretchy skin
- Frequent joint dislocations or sprains
The most common type is hypermobile EDS (hEDS), though there are multiple subtypes.
What is autism?
Autism Spectrum Disorder (ASD) is a neurodevelopmental condition that affects:
- Social communication and interaction
- Behaviour and flexibility with change
- Sensory processing and perception
Adults with autism may have strengths such as attention to detail and deep focus, but may also experience challenges with anxiety, sensory sensitivities, or navigating social situations.
The connection between EDS and autism
Recent studies suggest that EDS and autism may be linked in several ways:
- Shared genetic factors
Some researchers believe there may be overlapping genetic influences that increase the likelihood of both conditions occurring together.
- Sensory processing differences
People with autism and those with EDS often report sensory sensitivities, such as difficulty with certain textures, sounds, or lights.
- Autonomic nervous system issues
Conditions like Postural Orthostatic Tachycardia Syndrome (POTS), often associated with EDS, are also more commonly reported in autistic individuals.
- Higher co-occurrence rates
Research shows that individuals with EDS may be more likely to have autism, and vice versa, compared to the general population.
Why does this matter?
Understanding the potential overlap between EDS and autism is important because:
- It can help explain complex health presentations.
- It highlights the need for holistic, multidisciplinary care.
- It ensures that both physical and neurodevelopmental needs are recognised.
For adults, this awareness can mean more effective management strategies, tailored support, and improved quality of life.
How Harley Street ADHD can help
While we specialise in ADHD and autism assessments for adults, we also recognise that many people may present with additional health conditions such as EDS. Identifying autism can help individuals understand how their physical and neurological profiles interact, empowering them to seek the right care.
As a CQC-registered provider, Harley Street ADHD delivers professional, high-quality assessments and reports that can support further referrals, workplace accommodations, and tailored strategies.
Final thoughts
Ehlers-Danlos Syndrome and autism are distinct conditions, but research suggests they may be connected. If you suspect you may be autistic and want clarity on your neurodevelopmental profile, a professional assessment can be a vital first step.
Contact Harley Street ADHD today to arrange your adult autism assessment and take the next step towards understanding your unique needs.
